The Reason This Boy Is Wrapped Up Like A Mummy is Heart-Breaking
When you first see 14-year-old Jonathan you don’t notice anything strange. But when he starts telling his story you realise that he’s been in pain for a long time.
He was born with a very rare condition known as the worst condition you’ve never hear of, Epidermolysis Bullosa (EB), a rare disease that brings his skin a constant intense pain. The video contains images that are difficult to see, but Jonathan’s story is very important and should be seen.
Each day is a challenge for Jonathan, his skin is constantly ‘breaking’ and he has to be very careful and take good care of it.
Watch Jonathan’s story below, what a brave and inspiring character.